As I am a trained scientist I can read the same medical literature my oncologist and surgeons read, and I know exactly what their options are and what they can and can't do. There is no mystery or confusion as to the medical aspect of this in my mind.
My main problem is a complete lack of help from anyone throughout this ordeal, I've had to do everything for myself and indeed have met with active resistance when I tried to do some things for myself. There is much I'd like to do but I can't do it by myself and I can't afford to pay others.
So I just muddle along the best I can and try not to worry about it.
At least I came to grips with my own mortality in my teens, so that doesn't bother me.