The Other Andy
03-07-2012, 09:26 AM
Hi! My name is Andy, and I'm from Wisconsin. I'm a campaign donor and won't shut up about Dr. Paul to my friends and family :D. That said, the GOP disgusts me lately. As I don't believe there's any chance of Ron Paul getting the GOP nomination, I have set up this website encouraging his fans to tell him that we want him to run all the way to November; Republican or not.
www.paultheway.com
On another note, as a Phenylketonuric (http://en.wikipedia.org/wiki/Phenylketonuric) (link to Wikipedia), I have to have a protein supplement formula every day. Normally this would cost me over $1,000 per month. Luckily, the state of Wisconsin has a program that uses the fees charged to parents to perform the screening (less than $10 last I checked, some of which pays for the labor involved in the screening process. Infants who have PKU and are not screened are at risk for severe mental retardation). I am lucky, the vast majority of states either limit the availability (usually ends at age 18, citing research discredited long ago that said adults with PKU can forego the diet) or provide no support whatsoever.
In response to this, Senator Kerry has introduced the Medical Foods Equity Act.
http://www.govtrack.us/congress/bill.xpd?bill=h112-1311
This bill will force private insurance companies to cover the cost. While well-intentioned, I whole heartedly disagree with making private business pay for this. Not only is it wrong, but in every state that has such a law, the powerful insurance lobbies have gotten massive loopholes. It simply doesn't work, and states like mine would drop their working programs in favor of this dud.
I'd love to be able to take care of myself 100%. I have never relied on the government for any assistance besides this. I work for my living. I simply could never afford to, and it would be a huge burden on charities. Wisconsin's program works, and it works well. This is a state issue, and my state has taken care of it.
If you guys get a moment of free time in your day, contact your rep and let them know that if they want to take care of their citizens with PKU and other disabilities, look to Wisconsin to see how it's done.
North Carolina members especially. I haven't kept 100% up to date, but last I checked your state senate was debate dropping coverage alltogether.
Anyway, that's my long winded piece. If you want to check out more information on PKU check out http://www.pkunews.org/
And be sure to check out my site at www.paultheway.com !
Sorry for all the links. :o
www.paultheway.com
On another note, as a Phenylketonuric (http://en.wikipedia.org/wiki/Phenylketonuric) (link to Wikipedia), I have to have a protein supplement formula every day. Normally this would cost me over $1,000 per month. Luckily, the state of Wisconsin has a program that uses the fees charged to parents to perform the screening (less than $10 last I checked, some of which pays for the labor involved in the screening process. Infants who have PKU and are not screened are at risk for severe mental retardation). I am lucky, the vast majority of states either limit the availability (usually ends at age 18, citing research discredited long ago that said adults with PKU can forego the diet) or provide no support whatsoever.
In response to this, Senator Kerry has introduced the Medical Foods Equity Act.
http://www.govtrack.us/congress/bill.xpd?bill=h112-1311
This bill will force private insurance companies to cover the cost. While well-intentioned, I whole heartedly disagree with making private business pay for this. Not only is it wrong, but in every state that has such a law, the powerful insurance lobbies have gotten massive loopholes. It simply doesn't work, and states like mine would drop their working programs in favor of this dud.
I'd love to be able to take care of myself 100%. I have never relied on the government for any assistance besides this. I work for my living. I simply could never afford to, and it would be a huge burden on charities. Wisconsin's program works, and it works well. This is a state issue, and my state has taken care of it.
If you guys get a moment of free time in your day, contact your rep and let them know that if they want to take care of their citizens with PKU and other disabilities, look to Wisconsin to see how it's done.
North Carolina members especially. I haven't kept 100% up to date, but last I checked your state senate was debate dropping coverage alltogether.
Anyway, that's my long winded piece. If you want to check out more information on PKU check out http://www.pkunews.org/
And be sure to check out my site at www.paultheway.com !
Sorry for all the links. :o